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| For the Medical Benefit of Grace Ligon | Saturday, October 11, 2003 | ||
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| "Caring
for any special needs child is demanding, but when the demands are physical it is even more difficult." |
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| - Kathy Ligon, Dedicated Mom |
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A Note About Grace :My daughter, Grace Kelly Ligon, is a 4 ½ year old child with athetoid quadriplegic cerebral palsy which occurred due to a birth trauma. Grace can sit and crawl but cannot walk or stand independently. She has limited speech capabilities and issues with muscle tone in her jaw that cause drooling. Grace is a very smart child requiring ample assistive technology to make the most of her abilities and potential. : Mentally Untouched : Grace is always figuring out ways to tell her family what she wants, needs and feels. She is eager to learn, relying on computer and modified technology to assist her. Unlike other children her age, Grace cannot explore the world. She cannot pick up things and easily manipulate them. She cannot write her name and color for prolonged periods. She cannot have a conversation with a peer without adult interpretation/intervention. She cannot be left alone or unassisted for play, bathing or anything a child her age can typically do.  :
Caring for A Special Needs Child :
Grace's environment needs to be adapted to everything. Routine tasks
like going to the bathroom, eating or getting dressed require an exceptional
amount of time. As you can imagine, it can be frustrating for all
of us; Grace wants to run, jump and play...but simply cannot. Due
to the demands her condition puts on her physically, she also requires
specialized, supplemental nutrition to replace extra calories her
body burns while executing basic tasks.In addition, we constantly monitor various physical growth rates for her entire body. She has a splint for her right hand (her weaker side is her right) and AFO's (ankle foot orthotics) to help stretch her leg muscles. Yearly hip x-rays monitor her hip growth/development and determine if surgery or Botox injections are required. : I am Truly Blessed by this Child : and strive to satisfy her special needs. As a single parent I work full-time and provide insurance. Most of my "free" time is equally crucial--spent working together with Grace's teachers, therapists or Doctors to aid/assist her development. All of the associated costs are overwhelming. Therefore, any assistance endowed by this benefit will be put towards Grace's
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2003 Cyber Software Solutions site created & powered by:  www.cssolutions.com |
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To
donate, please mail check payable to: Grace Ligon Medical Benefit c/o LaSalle Bank, 6331 West Archer Ave Chicago, IL 60638 |
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